Osteogenesis Imperfecta Society

The Osteogenesis Imperfecta Society was formed in 1977 by parents and friends of those with osteogenesis imperfecta (brittle bones) in order to create a point of contact for newly diagnosed families. From simple beginnings, a nation-wide community has grown – a community where people can freely exchange experiences, friendship and knowledge of osteogenesis imperfecta and how to navigate the world with osteogenesis imperfecta.

The Society’s bi-annual conferences (next due October 2026, celebrating 50 years of our Society) are a wonderful opportunity for affected individuals, families and support networks to come together, gain helpful medical information from clinicians and members of the osteogenesis imperfecta community as well as to reduce the feelings of isolation that this rare condition can often bring. They are reliant on generous donations from both public and private organisations to ensure their tight knit community is to remain connected and empowered through shared experience and kinship.

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