The Australian POTS Foundation
Field of Interest
- Education/training and employment
- Health/wellbeing and medical research
Target Population
- People with a disability, illness or disease
- Women and girls
The Australian POTS Foundation (APF) is the only organisation in Australia solely dedicated to Postural Orthostatic Tachycardia Syndrome (POTS) and associated autonomic disorders.
We are a volunteer- and patient-led organisation, operating nationally since 2021, and hold full DGR1 charitable status. Our mission is to support Australian-led research, educate health professionals, and provide evidence-based resources, empowerment, and connection for our community.
POTS is a complex, often disabling autonomic condition that predominantly affects young women. It remains widely misunderstood, with many Australians facing delayed diagnoses, limited care pathways, and systemic barriers to support.
Our work is structured around four strategic pillars:
1. Advancing Australian-led Research
2. Ensuring Equitable Access to Care
3. Educating and Empowering Through Evidence
4. Strengthening Community and Support Networks
We deliver RACGP-accredited, community-informed education to healthcare professionals across the country and maintain a digital reach of over 250,000 Australians through our online resources, events, and programs.
Our recent impact includes:
• Successfully securing the adoption of an International Classification of Disease diagnostic code for POTS in Australia
• Partnering with leading universities to establish the first Australian POTS Research Registry
• Providing critical tools and support to improve quality of life for those affected
APF is the trusted voice for POTS in Australia and we are working to ensure every Australian with POTS is seen, supported, and able to access equitable healthcare.
Projects
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