Motor Neurone Disease Queensland

As Queensland’s leading organisation wholly focused on supporting people living with Motor Neurone Disease — and their families, friends and carers, MND Queensland offers understanding and practical assistance by delivering information, education and specialist support services. Our mission is to ensure access to best practice care and support for every Queenslander impacted by MND and contribute to finding a cure.

Diagnosis with a rare condition is overwhelming. A specialised organisation, MND Queensland provides practical assistance to people living with MND.
MND is a condition that progresses quickly, so it’s important that those impacted have access to experts who can provide proactive support. MND Queensland employs occupational therapists, speech therapists and physiotherapists trained in working with clients with MND. For instance, exercise can be unsafe and fatiguing for people with MND, so it’s essential that care providers have the right experience to keep patients mobile for longer, but no do harm.

Early intervention is key to managing MND symptoms, allowing for confident planning as the condition progresses. Because our team has an intimate understanding of the complex needs of MND, we can anticipate, be more responsive and provide more effective supports. Research shows a multidisciplinary support maximises quality of life for people with MND. We are able to coordinate someone’s total care plan, providing an efficient and reassuring ‘home base’ for those newly diagnosed or needing increased support in managing symptoms. There is no known cause or cure for MND. The average lifespan from diagnosis is 27 months. Every diagnosis is terminal and 2 Australians die every day from MND and another 2 are diagnosed every day.

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