Open Medicine Foundation Australia

Open Medicine Foundation Australia (OMF Australia) is committed to revolutionising research for multi-system chronic complex diseases, such as Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID. These conditions affect over 200 million people globally, including around 900,000 Australians, and are marked by Post-Exertional Malaise (PEM)—a debilitating fatigue that worsens with activity and doesn’t improve with rest. Although patients may appear healthy, they often struggle with basic tasks, resulting in social isolation, emotional distress, and financial hardship. Notably, 75% of those affected are women, with only about 5% achieving full recovery. These diseases cost the Australian economy up to $14.5 billion annually in medical expenses and lost income.

OMF Australia addresses this critical gap by supporting research to deepen understanding, develop diagnostic tests, and discover treatments, ultimately aiming for a cure. Our global network includes over 200 scientists and clinicians, with research centres at Harvard, Stanford, Uppsala, Montreal, and Melbourne, complemented by a computation centre for data analysis. Guided by a 21-member Scientific Advisory Board, our governance ensures real-time data sharing, accelerating understanding and responsibly managing funding.

This framework has uniquely positioned the Melbourne ME/CFS Collaboration to test hypotheses and advance quality research, leading to significant insights and offering hope to millions worldwide. OMF Australia is committed to transparency, innovation, and effective resource utilisation, maximising every contribution towards achieving our shared vision of a healthier future for all affected by these conditions. With individuals with lived experience central to our mission, our Board and teams include patients, carers, and health allies.

WEBSITE