Retina Australia

Retina Australia is a national, charitable organisation dedicated to supporting people affected by inherited retinal diseases. As an independent organisation, Retina Australia funds and facilitates innovative medical research into inherited retinal diseases through a competitive grants selection process from the top researchers in the country. Our research focus is on early detection, discovering preventions and new treatments, with the ultimate goal to unlocking cures.

As a membership organisation, Retina Australia also provides a current, evidence-based, comprehensive and accessible information platform and service on inherited retinal diseases. This includes providing details about the over 20 different types of inherited retinal diseases, information about inheritance patterns, genetic testing, updates on the latest research developments, clinical trials, emerging treatments, different eye care professionals, assistive technology and tools, along with practical guides for the newly diagnosed and those for family and friends.

We also facilitate peer-to-peer social groups and provide phone support and referrals to other professional and community support organisations.

Inherited retinal diseases are conditions caused by a genetic variation that may lead to significant loss of vision and in many cases, blindness. With an estimated 19,000 Australians with an inherited retinal disease, they are the leading cause of blindness in working age adults and the second leading cause of blindness in children in Australia.

There are no cures and there is only one treatment, for one type of rare form of inherited retinal disease. Help us change that.

WEBSITE